10 years a Momma

So I just turned 32 years old last week, although some of my peers might be freaking out as we are edging closer to the mid-30’s mark – I am good. Age has never been a scary thing for me. Of course, I am one to want to live forever lol. I want to see my kiddos with their kids and their grandkids. I want to grow super old with my husband. I want to see things – but from the comfort of my home, not much for traveling unless it’s to the beach lol. But I think my biggest and most important accomplishment has been my kiddos.

I haven’t always taken the easiest path in life. I have always wanted to do things my way or no way because I, of course, know the best way to handle things – or that’s at least what I told myself. Obviously, with that being said, I wasn’t the easiest kid to raise and my parents remind me of that every day. I wanted to go to college and get my teaching degree but also wanted to hang out with my friends and have a good time. I also wasn’t very good with the whole “work hard, play harder” situation. Either way, I’m glad we can laugh about it now but I was reeeeeeally good at the playing part.

Let’s fast forward to the time that I thought I was ready for a family. I don’t know about y’all, but this still makes me laugh. Who is ever truly ready for a baby? I mean, I was the furthest thing from being ready but even those that think they are, probably aren’t. I was a hot mess: 19 or 20 years old, dropped out of college to move back to Richmond, VA, jumped from job to job but really “peaked” as a manager at Food Lion haha. I was married to my first “love” but still living with my in-laws at the time. I thought I could rule the world – lol it’s a good thing I wasn’t full of myself. I mean, I know how it happens but still wasn’t fully prepared when I found out I was pregnant. I was still a baby myself but the thought of having my own baby was awesome. Unfortunately, I had 3 miscarriages the first 3 times I became pregnant. If that wasn’t reason enough to change what I was doing I don’t know what is. At that point I was devastated and wanted nothing more than I carry a baby in my belly and be a Mom.

At the age of 21, I was pregnant with my little Mileigh Ann. She became my whole stinkin’ world y’all! She came into the world just 11 days after my 22nd birthday. I might not have made the best decisions as we were growing up together but I knew she was meant to be my little Goober. Being that I only had one kiddo, she went everywhere with me. In hindsight, maybe places that she shouldn’t have been but I was her Momma and I wanted to show her to the world. Eventually I had her brother, Conor Mathew, 2 years later and things just got crazy from there. In the last 10 years, I have since been divorced and left from a not so great situation, ended up reconnecting with one of my best friends from high school and remarrying him years later. We made a life together. We both have great jobs, we have a beautiful house, and now have added to our family. We fought my cancer together. We handled more miscarriages together (have had a total of 6 now). We’ve been through a lot but I wouldn’t want to do life with anyone else. Needless to say, I am happy.

I am the proudest Momma to three happy, respectful, adorable kiddos. As I write this, my oldest will be turning 10 years old on Sunday and I struggling. She made me a Momma. She and I grew up together. She showed me what true love is. She pushed me to be the best person I could be, in ways that she will never understand. It’s amazing the impact one little girl can be on your life – especially when she’s only been around for 1/3 of it but it’s by far the best part!

So this is just a quick reminder to hug your babies tight. It feels like it was just yesterday that I was watching that sweet baby sleep in her crib. Now she gets on the bus without a hug or kiss. She wants to run the neighborhood with her friends. She is my social butterfly that doesn’t want to be held back, and in so many ways a spitting image of her Momma. I love you Mileigh Ann and thank you for being the start of my biggest trophy! I am grateful for each of my kiddos – Mileigh, Conor and Spence – and blessed I was picked to be their Momma! ❤️

Trust Your Gut

Oh it’s me again – I know, I know, something must have happened because she’s posting again lol. Although that might be true, I do intend to post more often. As we all know, the journey is never over, but the chapters change with each tide.

So I can honestly say that last year had been a good one. As you might remember I was given the “no evidence of disease” 2 years ago yesterday but we had to wait an additional 6 months to start trying for another baby. Then 6 month and 2 days later, our Baby Bear was finally more than a thought, if you know what I mean?!

During my pregnancy, my thyroid medication had to be changed a total of 6 times so I was on a constant roller coaster (more than just the change in pregnancy hormones – add in the fluctuation of thyroid hormones too)!!! I was grateful for both my doctors to be in constant communication and having monthly blood work checks to make sure I was where I needed to be. After Spence came into the world last July, I was actually quite surprised by how quickly I fell back to my “normal”. I felt great and started to lose the pregnancy weight very quickly – thanks to breastfeeding the first couple months. Unfortunately, after several attempts and trying what felt like everything, I was unable to continue to produce enough breast milk for Spence. I was thankful for my Endo to confirm that many of us without Thyroids are unable to produce the required amount – made me feel better knowing it wasn’t just “me”. I thought I would take it better with baby #3 but #momguilt always sinks in. Even if I knew that as long as he was fed, that’s all that mattered.

Fast forward to this past December, Spence was just 5 months old and I noticed I was still not feeling my best. Part of it was the stress of the holidays, I’m sure, but I knew it was more. I sent my Endocrinologist an email asking about my numbers. He assured me that they were fine and that I needed to give my hormones more time before we try to change anything. I was definitely frustrated by his response and should have insisted on blood work but the anxiety kicked in telling me I was overreacting. January came and I had my annual whole body scans – thankfully everything came back where they should and I could go back to my normal and focus on my always busy family life.

Within a month, I started feeling as though something still wasn’t right. My anxiety and depression was at an all time high again. I was tired All. The. Time! Yes I know I have a busy home with three kiddos but it was more. I brought this up to my Primary doctor and again, it was brushed off. After MONTHS of feeling sluggish, continuing to gain weight, I was tired all the time, I started having anxiety attacks again, having hot flashes several times a night, couldn’t get warm during the day, having my own emotional melt downs multiple times a week, having a period for weeks and weeks at a time, then skin rashes breaking out all over my body – including my head which resulted in scabs on 75% of my scalp, debilitating headaches, muscle cramps and joint pain – I had ENOUGH. I made the first available appointment with a new primary doctor within the same practice. Within 3 days and several attempts to get the information for the doctors office, I was told that my TSH (Thyroid Stimulating Hormone) was at a 14.67. This is absurd! My numbers should be at ONE or less is ok too! And it was 14 times higher than it should have been. This is not a small increase – I felt like I was dying but because of my anxiety, I kept it inside until I had more than I could handle.

Trust me, I am the first one to admit that we must be our own advocate – I should have know this from the years and years that I went undiagnosed while the cancer spread to my lymph nodes and both of my lungs. But sometimes we forget and trust that others have the best of intentions. But goodness gracious, no matter your situation or medical conditions, please trust your gut. For the 3rd time I am looking for new doctors. It is their job to help me. If they can’t, you move on to someone else because if not, you can go through several months of not being your best self. I have lost it on my family and missed out on things with family and friends because of it. I can’t get these months back but I can take charge of taking care of myself again. Never give up and always reach out to others for help.

For those that have Thyroid Cancer or other related Thyroid issues, I think we can all understand that our fight it never over. No matter how many people or doctors or professionals tell us that it’s the “easy” cancer. Know that you are NOT alone.

Always,

Kat

National Cancer Survivor’s Day 2016

Happy National Cancer Survivor’s Day!!!

Seriously – we’ve made it! We’ve made it through surgery, treatment, and every emotionally and physically trying day since being diagnosed. This is NO easy feat – no matter what cancer you have or what stage it is. We are fighters, we are warriors but the best of all, we are survivors!!

So I just wanted to let you know what the word SURVIVOR means to me. But first we have to go back to shortly after my surgery, December of 2014. I was just getting home and adapting to my new life with no thyroid. I was on pain medication, muscle relaxers, my new thyroid replacement pill and and whole tray of additional medications. I remember both Spencer and my dad telling me “You’re a survivor!” (not to mention, many of my family and friends – they are just the ones telling me on a daily basis at home). Of course I “survived” surgery and I was going to beat the cancer, that so rudely came into my life and subjected me and my family to a year and a half of pain, tears, worries, stresses, and your can’t leave out the mountains of debt. But at the time, I thought Survivor meant I was in remission – but I hadn’t beat it yet, I wasn’t given a “No Evidence of Disease.” I remember the exact moment that I realized how wrong I truly was. I had just gone to my one  year check up following my radiation treatments (RAI), and I was glowing sitting in the waiting room because I just KNEW I would hear that there was “No Evidence of Disease” (NED) – because I fought so hard for 1 year and 4 months. Except that’s not what my Nuclear Medicine doctor told me at all. He said that I still had a small tumor or mass of Thyroid tissue behind my thyroid bed. He said it should have been gone, especially after the extremely high dose of the Radioactive Iodine (RAI) I was given one year before. I might need another dose or we might have to explore other options. I left that appointment feeling defeated; not to mention sad and angry and worried and a thousand other emotions! It was the next day that I was sick and tired of waiting to celebrate so I had my brother start drawing my tattoo. This was the tattoo I had been waiting to get until I was considered a “SURVIVOR” but it was that moment that I realized I didn’t need to wait. I had been a survivor all along. I was surviving every day since being diagnosed because that’s what it takes to get through it. Fighting and Surviving.

So today I celebrate the last one year, seven months and 17 days. I’ll be raising a glass tonight: for me, my ThyCa Sisters (and brothers), and all the amazing Survivors I know (and don’t know) in my life. This is for us!

To all of my Survivor friends and family, no matter the cancer, make this day special. Celebrate YOU – you are a SURVIVOR! Comment below what YOU are doing to celebrate! 🙂National_Cancer_Survivors_Day_2016-702x495

PS. I am loving that it’s exactly 6 days away from our Relay for Life. What a way to celebrate!!

Relay for Life Team: All Night for the Fight

Ok yall, it’s time for Relay for Life!!! I couldn’t be more thrilled to have our own team this year and it’s going to be AWESOME!

An introduction to Relay for Life:

I’m going to be completely honest, prior to being diagnosed with Thyroid Cancer, I had remembered hearing about it Relay for Life but had never participated in one. I was asked by my dear friend and neighbor last year to join her team, not truly understanding what it was all about. I can tell you, this experience was life changing. To see so many people coming together to help bring awareness, raise money, and support each other was just an incredible thing – and of course, it was FUN! Please, please, please come and hang out with us! 🙂

What is Relay for Life:

  • It’s an organized, overnight community fundraising walk for ALL cancers
  • Teams of people camp out around a track
  • Members of each team take turns walking around the track
  • Food, games, and activities provide entertainment and build camaraderie
  • Family-friendly environment for the entire community

What makes Relay for Life more awesome?

  • In more than 5,200 communities and 20 countries, Relay for Life events comprise the signature fundraiser for the American Cancer Society, raising more than $400 million dollars.
  • Survivors Lap: All cancer survivors at the event take the first lap around the track, celebrating their victory over cancer while cheered on by other participants who line the track.
  • Luminaria Ceremony: Takes place after dark, so we can remember people we have lost to cancer, honor people who have fought cancer in the past, and support those whose fight continues. Candles are lit inside of personalized bags and are placed around the Relay track as glowing tributes to those who’ve been affected by cancer.
  • Fight Back Ceremony: This emotionally powerful ceremony inspires Relay participants to take action. The Fight Back Ceremony symbolizes the emotional commitment each of us can make in the fight against cancer. The action taken represents what we are willing to do for ourselves, for our loved ones, and for our community to fight cancer year-round and to commit to saving lives.

What to expect at a Relay Event?

  1. Relayers are welcomed in the Opening Ceremony.
  2. Relay starts with the Survivor Lap, when survivors walk to celebrate their victory over cancer.
  3. The Caregiver Lap recognizes those who have given care to cancer patients.
  4. All of the Relay teams are invited to walk together during the Opening Lap.
  5. Luminaria bags and candles are lit during the Luminaria Ceremony to honor loved ones who have passed or are fighting the disease.
  6. Individual Walking is observed throughout the night with Family Games, Activities, and Entertainment.
  7. The Fight Back Ceremony helps close the event. Relayers take a final lap and pledge to take action and spread awareness of cancer research, treatments, and prevention.

How can YOU help?

  • Join our team!! Seriously, it’s going to be a BLAST! Whether you can come for an hour or all night – come hang out, walk a couple laps with us and celebrate those that are fighting and honor those that we have lost.
  • Help raise money – share our team link (see below) to your Facebook page, Twitter, Instagram, or any other social media. It doesn’t matter if you can give back $5 or raise $50, anything helps!!
  • Donate a Luminaria Bag/Torch – You can choose to decorate a bag (see me for details) or you can purchase online and the event will have a bag for you lining the track, including “In Honor Of”, “In Memory Of”, or “In Support Of”.
    • White Luminaria Bag – $10 (or 3 for $25)
    • Blue Luminaria Bag – 3 for $25
    • Tiki Torch of Hope – $30 (or $35 includes a keepsake)
  • Come support us!! Even if you aren’t interested in walking with our team, just come be apart of this fantatic opportunity – come watch the opening ceremony, have a few laughs, etc. Just come, but I’m going to warn you, the energy is contagious and you might not want to leave! 🙂

Event Day Logistics

  • When: Saturday, June 11, 2016 from 6pm to 7am
  • Where: Fauquier High School (702 Waterloo Road, Warrenton, VA)
  • What should I pack? folding chair, a change of clothes, a blanket/pillow, warm clothes (in case it gets chilly), bug spray, and snacks.
  • Where to meet? we have a tent set up – you just have to look for our sign with team name: All Night for the Fight!
  • Are you a Survivor? Make sure you sign up online as one so you can receive the t-shirt. And please come early to receive your complimentary food in the Survivor tent.
  • Food/Drinks? Yes there will be vendors/other teams selling food/drinks and of course, there will be water provided for participants.
  • Bathrooms? There are bathrooms on site – duh! 😉
  • Kids? Of course! You are never too young to Relay! Just make sure you bring all the necessities! And if your child under 18 years of and will be walking, be sure to bring your signed Youth Participant Agreement to the Registration table.
  • Do I have to walk the whole time?? NO! In order to represent the fact that “Cancer never sleeps”, we ask that each team has a representative walking the track at all times. This should not be just one person – team members can take shifts!
  • Want to sleep? You are more than welcome to take a nap in the tent, OR go home, take a name and come back! Participants are not required to stay up all night.

Relay for LIfe

Thank yall for taking the time to read this. I just wanted to answer any questions that you might have about this amazing event and hope to see YOU there! 🙂

Our Team Link: 

http://main.acsevents.org/goto/FauquierAllNightfortheFight 

Better place since you came along….

So I wanted to dedicate this post to my Husband for so many reasons – first and fore most because he is awesome! More importantly, not only has he been there every step of the way in my ThyCa journey – he’s dealt with all 50,000+ emotions that comes with being diagnosed/treated for cancer.

When I was first told I needed to get a biopsy done, I was terrified and inconsolable. My Hubby, Spencer, said over and over that it would be fine – there was no reason to worry. In my opinion he was being insensitive but come to find out, he just had no clue how serious the situation was. It was his mom and sister that finally got through to him that it’s not just an over dramatized response – this is really happening.

I still remember the day that I was upstairs in our bedroom and Spencer came up to talk – he ended up breaking down and crying. It was at that point he told me how helpless he felt and didn’t know what he could do to help. I honestly think it was a turning point in our relationship. We both needed each other and would fight to no end – together!

Once diagnosed, the reality of the situation hit both of us very hard. Expanding our family was once again on hold, the countless doctors appointments we continued to miss work for, figuring out how to break the news of cancer with our kids, and all the stresses that came with the over abundance of bills that were coming our way. I know I was a mess, and that’s putting it lightly. And even through it all, Spencer comforted me, consoled me and the kids, was constantly keeping family in the loop when I couldn’t get through the newest update, and just all around supportive and positive. One of the best things he did, was just to let me vent – because it’s exactly what I needed. He would let me cry on his shoulder as I wondered what was coming next. He never discounted how I felt by saying I shouldn’t worry about it. There were days that he might not have been as patient, hey it’s a tough job to keep up with someone who is on a constant roller coaster – filled with stress, anxiety and negative thoughts. When I came off as positive and always so uplifting in my Facebook posts, it was partly because I already vented to my family and friends, but mostly my husband. Not to say I wasn’t positive, but it definitely takes work to continue to be positive when there was so much back to back bad news.

I have heard so many people who have been diagnosed with Thyroid Cancer that have lost friends, spouses, or just didn’t have the support. And I am so grateful to have so many people on a daily basis that have continued to be there every step of the way.

To my husband: my one, my from now on – thank you! Thank you for your love, support, and constant comfort. I can’t say I wouldn’t have gotten through it without you (only because I’m a fighter) but you made the ride a hell of a lot better. I love you and can’t wait to see what the next couple of years has in store for us!

Rachel Platten says it best – “It’s a better place since you came along!”

And thank you for always reminding me you’ll “Stand by You” (aka me!).

The words that every ThyCa patient waits for….

No. Evidence. Of. Disease.

It’s been one year, five months and 22 days that I had to wait to hear those words. But I can tell you, of all the dreams and visions of the way I thought I would feel when I heard them, are nothing compared to how I felt at my appointment the last Thursday as the words came out of my Endo’s mouth.

When you look up the definition of “No evidence of disease” you get a multitude of things that come up. First, it talked about Survivorship (before and after treatment) – wow! Those words just make me smile because that’s exactly what we’ve done, we’ve survived and we’ll have to survive every day for the rest of our lives. That might seem dramatic to some but just keep in mind that with every cancer there is a chance of reoccurrence, it doesn’t matter how fantastic your surgeon is (which mine was), or how high of a dose of treatment you take – cancer can always come back.

I can only speak for myself and say that I am a very optimistic person but when you are diagnosed with cancer it’s an every day challenge. Not necessarily to remain positive but it’s almost like you need to coach yourself, especially on the bad days that everyone has. I am often told to “stay positive” throughout my journey, even if I bring up statistics or just being realistic for a moment. But I can tell you, I will always be positive.

  1. I am positive I will be strong enough to handle whatever comes my way.
  2. I am positive that I remain proactive with my health throughout my ThyCa journey.
  3. I am positive that if I do experience reoccurrence, I have family and friends that help support me no matter what, and especially on my worse days (#noonefightsalone).
  4. I am positive that there is a higher power looking over me.
  5. I am positive that I will never give up HOPE that there will be a cure one day.

The second definition of NED is: No evidence of disease (NED) is a term that is used when examinations and tests can find no cancer in a patient who has been treated for cancer. Which is amazing news!! So basically I was NOT expecting to hear these words for another year – especially after the discussion with my Nuclear Medicine doctor a few weeks ago. They determined that the tumor/thyroid tissue is still present on the back side of my thyroid bed and because of that, I would need to be considered for another dose of RAI or surgery. His recommendation was to wait a year to determine if it’s growing and/or how fast it’s growing. With that being said, I am already at almost a 1/3 of how much RAI (radiation) that I can use in my life time so they aren’t sure that treatment was the best option (keeping in mind that Thyroid Cancer has one of the highest reoccurrence rate across all the cancers). Of course I had to sit on this for a good three weeks before finally getting to speak to my Endo (she was out of the country on vacation). But when finally had my appointment, it was the BEST news!!! She confirmed that after comparing all of my scans, blood work and tests over the last year and a half, that they are VERY confident that the tissue remaining, is in fact benign. Therefore, I have my NED!!! 🙂

With all this being said, I am a survivor. I have beat cancer. And if need be, I can do it again. And I couldn’t have done it without each and every one of you so THANK YOU!! Going back in 5-6 months to have my next set of ultrasounds, blood work, and tumor marker done! 🙂

ThyCa Tattoo

So I did it. I finally got the tattoo I had been waiting to get since the day I was diagnosed. Originally I wanted to wait until I was told there was No Evidence of Disease (NED) but with the recent news that there is still some additional work needed to do, I decided now was the time. I don’t have control over much in this situation BUT I do have control over this and this makes my heart happy. 🙂

So here it is….

Kat ThyCa Tattoo

I wanted to explain what this tattoo means to me because I have thought about for about a year and a half now and carefully put it all together. My brother helped bring this tattoo to life as it was a compilation of several different ideas.

  • First of all, there is the obvious Thyroid Cancer ribbon which is teal, pink and purple. I just didn’t want the original ribbon, I wanted something a bit more original.
  • Feather: So I wanted to incorporate a feather, as the eagles feather stands for courage and strength. Anyone that has dealt with cancer or an illness has had to fight harder than they ever have in their lives, and that couldn’t be more true for my journey over the last 1 and a half years.
  • Sparrows: They derive power and protection in their numbers.They survive by traveling in clusters and are a community that does not do well when by themselves. I couldn’t think of a better symbol for my “posse”, my support group of family and friends that helped me every step of the way. Whether you are there in the day to day process, or someone that randomly sent a message to check on me, big or small, you were a part of my clan of sparrows and I thank you!!
  • Heart: well that was a last minute addition (thanks Scottie!) but this means multiple things to me – overall, Thyroid Cancer was never who I became, it was a small part of me and what I went through. I will never be the same person I was before 10.23.14 but I have become a better person because of it. But it also stands for all the love and support I have received from family and friends that have always been in my life, but also to the group of amazing people that have come into my life because of Thyroid Cancer.  Although it’s a crappy way to meet, I don’t know what I’d do without the fellow ThyCa survivors and supporters who truly understand what I am going through.
  • Date (didn’t make the cut): So originally I wanted to include the date that I was diagnosed (10.23.14) because that date will always be the start of the “new” me but unfortunately, the numbers would have been too small to be able to see it because I didn’t want them to stand out as they weren’t as significant as everything else.

So there you have it. I am so excited to have this tattoo, and of course it’s on my left forearm where it can be seen by everyone (also covered for work, if need be). It can be a conversation starter – bring on Thyroid Cancer awareness!! It’s a reminder that I am a fighter. And no matter what I find out next week with next steps and if I need to undergo another RAI treatment or not, it’s going to be ok.

 

Original drawing by Scottie and completed outline of tattoo:

 

Goodbye 2015, C’mon 2016!!!

We did it – made it through another year and I have determined that 2016 is going to be my year! Oh and yes, I’m finally posting a “end of the year” post lol. I’m only 19 days late….but better late than never.

So 2015 was a year full of emotions, trials, tribulations, and the “old/new” me. I started the year weak and confused but ended it confident AND finally finding my new “normal.” Back in January, I was only 4 weeks post-op following my TT and left neck dissection. Still very dependent on family and friends – not just physically, but emotionally as well. February and March were filled with doctors appointments, radiation, and a roller coaster of emotions that came with each not-so-great results at my appointments. Over the summer I went through anxiety attack after anxiety attack while battling depression before finding the right meds. And with each medication change, I had to go through it over and over again – feeling hopeless. Finally getting some good news in September, letting me know that the radiation had done it’s job and cleared my lungs so just waiting on the 12 month visit to find out about the rest (c’mon March 2016). But this was the first time that we had a few steps forward without falling backwards.

So in case you noticed, I said I wanted the “old/new” me because for most people, they wish for “new year, new you” but that’s not what I wanted at all. I wanted the OLD me – before ThyCa. I wanted the person that could stay level headed about simple stressors like bills or getting overwhelmed by kids or a dirty house without having an anxiety attack. I wanted the person that could ride a bike or run down the street with my kids without having an asthma attack. I wanted the person that had long pretty hair, the person that didn’t have to cut off her hair because it was falling out in clumps due to my medication increase (because I have the good cancer….*rolling my eyes*). I wanted the person that didn’t feel exhausted 24/7 or fall asleep every time I sat down which caused a lot of missed alone time with my Hubby. But this past fall, with the help of my therapist (lol), that’s when I realized – I will NEVER be that person ever again. Like ever. When I was diagnosed with Thyroid Cancer, I was no longer that person. Then when I went through surgery and radiation and everything else in between. All of this changed me into the person I am today. So this year I am willing to accept that and just hope/pray that I become the best person I can be. With that, I hope it’s a mix of who I used to be and who I’ve always strived to be. I hope to control my anxiety (with the help of my medication lol), by knowing my triggers and knowing when to take a break. I hope to learn that I can spend time with my kiddos without physically keeping up – I never turn down some cuddle time. I hope to find other ways to be more active and maybe more natural ways to be more alert so I never miss a minute BUT to allow more time of REST so that I can take full advantage of the time I’m awake. But more than anything, I hope to be the best person I can be – no matter if that’s the old OR new me!!

So one of my goals for 2016 is to spread more awareness and reach out to more people about ThyCa. Just in the last 6 months, I have had 3 people come to me with a friend that had recently been diagnosed. They all wanted me to reach out for support and a listening ear. I can’t tell you how much that meant to me – especially to someone that started off with not even know what the Thyroid did. Just like with this blog, I not only wanted to give insight for family and friends that wanted to know how I was doing – I wanted to give HOPE to those going through the same thing. I was lucky enough to have my Hubby’s cousin who allowed me to blow up her phone with questions on a daily basis. She will NEVER know how much it meant to me. To have someone that I could reach to for questions and for someone to fully understand every step of the way of what I was going through. That’s what I want to do – be there and spread hope.

If you are someone that needs a ThyCa buddy to vent to, just message me and I’m your girl! We need to stick together and be there for those who are in need.

Today Marks 1 Year

Well this is a day that has been on my mind for quite a while now and of course, with very mixed emotions. I remember the night before my surgery last year, I couldn’t wait to get all this behind me and I just kept thinking ahead, to be able to celebrate the one year mark because I knew everything was going to be so much better by then. It’s definitely been a roller coaster of events over the last year – from surgery to radiation, the constant change in medications, and the never ending doctors visits. But this was just a small moment in my journey…..

We all change with all the trials and tribulations we have in life. More than anything, I know that I am stronger. Every time I didn’t think I could handle any more bad news or another scan or test, I held it together. With every prick of the needle or side effect I had to endure, I held it together. With every question that I got from my kids asking if Mommy was going to be ok, I held it together. But just like with any process, you have to learn to let go too. And I did – many, many times. I can’t even begin to count the amount of times that I just broke down and cried, over every little thing. I tried to fight it once I got past the initial shock of the word “cancer”, but then I realized that’s just all part of the journey – knowing it’s ok to have good days AND bad days. There were days that I didn’t want to get out of the bed, there were days that I got the kids off to school then crawled right back in bed to just cry. BUT THEN, there were other days that I drove home and belted out & at the top of my lungs “Fight Song” because that’s what I needed to get through that moment in time when I thought I was done putting forth the energy to keep going and fighting. I have had to learn that I can’t have control over everything, no matter how hard I try. You just have to go with the flow and know that everything happens for a reason, but for that same reason, you have to learn when to fight and when to let go. There were days that I would give in and other days that I would fight to no end. I have learned that you can’t get through something like this alone – and makes me that much more appreciative for all of my amazing family and friends that stood by me every second of every day and gave me that push when I needed it or the shoulder to cry on when I needed it more.

In the recent weeks, my hormone meds were increased and with every change in medication, it takes time for things to get adjusted. But the more and more they kept my Thyroid hormones suppressed, the harder the side effects were to deal with. I felt like I was taking 10 steps back to 6 months ago when everything was out of control. I was finally starting to get into a routine and getting to feel a sense of normalcy prior to this last change. So when I got the call that my TSH numbers were going up and they needed to increase my meds to keep things leveled out, I just lost it. I didn’t want to go through all that again. The exhaustion, muscle cramps, the shakes that never went away, heart palpitations, unable to catch my breath, extreme hot flashes that would last hours, massive hair loss (resulting to falling out in clumps) and unable to keep my thoughts on anything. All of this brought my anxiety back with a vengeance, which in turn, intensified with each of these side effects.

So with all this being said, I was having a hard time thinking how I was going to “celebrate” today when I felt I couldn’t be happy with my current state. So without coming off like I had nothing to be grateful for, I then realized, I just need keep moving and know that all is going to be ok. So for now I can appreciate the journey over the last year because I am still here and that can not be said by all those who have been diagnosed. Today is going to be an emotional day for me and I might not want to do anything this year but that’s ok. Maybe next year I will think of something to do in honor of this day.

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Cancer Outlook

As I am preparing myself mentally for my upcoming scans at the end of the month, I start to think about how I am going to react once I get the results. I know this may sound silly because, of course, I am pretty optimistic that everything is going to be ok and show that the tumors have shrunk in my lungs (see Post-Therapy Scan Results for previous information)…BUT Thyroid Cancer is different than any other cancer when it comes to “remission.”

There is no doubt that I am ready for this cancer to get out of my body. and I couldn’t be more excited to finally get the good news I’ve been waiting for since I was diagnosed. First of all, after you receive the RAI (Radioactive Iodine), it takes a full 12 months for the radiation to do it’s job but because they found I had metastases in my lungs AFTER the determined the correct dosage to handle what was left over in my Thyroid bed, any additional lymph nodes that my Surgeon may have missed (I mean come on, he removed 56 of those suckers so I didn’t hold it against him when they found 2 more in my scans that he missed during surgery), and in hopes to find, if any, additional locations that my cancer may have spread to. In my initial scans, prior to the full dose, the Nuclear Medicine doctors were honestly surprised that nothing else was found. So they typically don’t do any follow up scans until 12 months because that will be when the radiation has fully been able to do it’s job. When they said they wanted me to come back in 6 months for follow up scans, I was a little anxious when the doctors decided that if there was any “uptake” in my lungs still, then they will go ahead and do another dose of the RAI. I mean do what y’all have to do to get the cancer out but the thought of going through all of that again, just 6 months later was not what I wanted to hear at the time as I just got most of my side effects to go away from the RAI.

Papillary Thyroid Cancer is typically slow growing and most commonly does not spread outside of the immediate area of the neck but because mine has, it gives me over 30% chance of reoccurrence in my life – even decades later. Of course, this is no excuse for a negative outlook – just a more cautionary one. I have my fingers crossed and even put in a few prayers to have a “NED” (No Evidence of Disease) scan results. And when I get those results, we will definitely have a celebration in our house – to have a NED result for the first time in 11 months which was the start of my ThyCa journey, would be amazing prior to celebrating my 1 year of being a Survivor next month. But for the next 5+ years my body will be checked every 3 months for my Tumor Marker. Eventually, I won’t need to be checked as often but I will still have to worry with every blood work that I come in to do and with every 12 month Whole Body Scan, which will require me to put my life on hold for 5 straight days of appointments in Washington, DC.

I will continue to live day by day and celebrate each and every positive thing that comes my way as I put some of this behind me. I start my Low-Iodine diet tomorrow to prepare for my scans so I am just hoping to lose some additional weight so that, for sure, will keep me distracted for the next few weeks. I will always hope and pray for the positives but will constantly prepare myself for the worst whenever these tests come around as that is what I need to do to move forward.

Until next time…. 🙂

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