Well before I talk about how horrible isolation was to be away from my family, I feel like I need to talk about the results of my scans following my RAI.
My Momma drove me to DC last Tuesday (3/10) which was day 7 of isolation. Upon arriving in the Nuclear Medicine office I have to say I was in pretty good spirits – I knew this was the day that they were going to release me from isolation and when I got home I could hug my babies. I had quite a few health issues going on (that will be covered in my Isolation blog so stay tuned) but nothing could hold me back. Don’t get me wrong, I was nervous, so nervous – but this was the beginning of the end. I thought that today I could write on my calendar that I was on my road to remission.
My appointment was at 9:30am and I honestly wasn’t sure how long I was going to be there. I thought it was going to be one or maybe two quick scans. Nope – two full hours of scans. Much like one of my full days of scans prior to RAI. Except this time I knew what expect and I was much more restless this time around. The first time I knew I wasn’t getting results that would mean anything or change anything, this time it would – at least in my mind. There was no dozing off in the machine for the 20 or 40 min scan, that’s for sure.
Finally, I was released! I came back up front to my Momma and looked defeated haha. I was exhausted and hungry and ready to hear the results! About 10 minutes later the same Technician came back and told me she needed me to come back for one more scan. I immediately looked at my Momma with fear in my eyes. That was NOT good. They took me in a room I’d never been in, to do a scan I’d never done before. She told me “We saw uptake in your breast….” and that’s all I heard. She asked some other things and I shook my head to things that I have no clue what she asked. I fought tears as she disappeared from the room to get something. She was gone for 10 minutes. I had to do this scan for 45 minutes – it was horrible. My arms were pinned above my head and these 3 huge instruments circled around me as I laid flat. It was scary and I wanted to be done. Finally I was able to go out to my Momma and just cried and told her what they said. Within minutes they came out to get us to discuss the results.
Normally when they have brought us in the back to discuss results, we are taken to the doctors area where we can see the scans while we talk. But this time we walked right past that door and around the back to a conference room. This is definitely not good.
We sat down and in came in the Nuclear Medicine Doctor. She sat down and explain that originally thought that my Cancer metastasized in my breasts but after the scan they actually see that it’s spread to both my lungs. Because the type of scans only pick up the radiation in a “2D” way there is no way to determine how bad it truly is but they are recommending that I get a CT with contrast to determine if it’s microscopic or nodules.
At this point I lost it….so did my Momma…..
With a CT, if it’s microscopic – they might have to do another threatment of RAI in 6 months. If it’s nodules, surgery might be needed and in some cases even part of the lungs (which would require therapy to learn to breathe with less). All of this VERY is doable, but VERY scary.
I just had my CT today at Washington Hospital as they always seem to take great care of me and they are one of the top Thyroid Cancer facilities in the Nation. I know they will continue to stay on top of things. I have a follow up appointment on Thursday with my Endocrinologist. As most everyone knows by now, it takes a few days or sometimes weeks to fully digest this information before I can put it out there for the world to know so please bare with me. Thank you all for your overwhelming love and support for our family!
Although we don’t know a lot of information right now, the one thing we do know is that everything is going to be ok. Might not be tomorrow or next month. But it will be ok. Thank you for your thoughts and prayers. 😊